Posts tagged as:

disability

The disability paradox

by Henk ter Heide on Saturday January 14, 2012

Don’t you hate it when disabled people use the disability card?
Drawing your pity by explaining how they can’t preform some mediocre
task because they’re disabled.
I do.
Having a disability I hate it even more when I act that way.

But things seem to have changed the last ten or fifteen years.
It used to be that when I told people that I can’t drive a car. They
felt sorry for me, because that meant having to use that nuisance called
public transport.
But nowadays I better have a good story to explain why I can’t.
Otherwise they’ll treat me as though I’m some kind of moron.

The big question here is.
How will I ever improve my working conditions if I keep pointing people
to the tasks I can’t preform. Instead of calling their attention to the
skills I excel at.

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Getting those juices flowing again

by Henk ter Heide on Sunday January 20, 2008

Finding a way out of the “annoyance” trap.

What do you get when you put 2.000 people with disabilities in a room?
A lot of complaints about all the problems they have.

Last week one of my colleagues got a new job. After having a secondment at some company they gave her a contract.
You would think that every body would be very happy for her but they weren’t.

Friday at noon I stepped into the minivan that would take me home and the first thing the driver told me was how angry he was because Gerry didn’t say good-bye. He thought that would be a normal thing to do. When you find a new job, you say good-bye to the driver of the minivan who has taken you to your work for the last few months.
I disagreed. Telling the driver not to pick me up because I found a new job wouldn’t be on top of my to do list. I would trust Promen to pass that information on to their drivers.
Talking about it I found that the driver did know that it was the responsibility of his manager to give him that kind of information but it was much easier to blame Gerry.
My problem was that he kept nagging about it for the thirty minutes I sat in his car.

I would love to tell you that this anecdote is about something that hardly ever happens. But sadly it isn’t.
Working at a sheltered workplace means having to listen to this kind of stories all day long.
Even worse. Working at a sheltered workplace means telling this kind of stories to every body who wants to hear them. (And to every body who doesn’t want to hear them :( ).

It’s kind of a trap.
When you start working at the sheltered workplace you have a lot of problems.
You have tried working in a regular job and failed. You have tried again and again and failed. At some point the government steps in and you are send to a sheltered workplace.
You tell yourself that you wasn’t send to a sheltered workplace because you did something wrong. You tried your best but it just didn’t work out. You are not to blame.
And of course you are not the only one who feels that he is not to blame. Every one of my 2.000 colleagues feels that he is not to blame. That something happened to them that was out of their control.

Now you might think that a sheltered workplace is managed by people who are specially trained to work with people with disabilities. People who know how they should teach people how they should do their work and how they should work in a healthy manner with respect for their own body.
But you would be sadly mistaken.
With the president of the company as notable exception the management consists of people who also are disabled. Who where send to the sheltered workplace because they couldn’t hold their own at a regular job. People who feel they did nothing wrong and that nothing is their responsibility.

When I started working at the sheltered workplace in 2000 I found myself in the worst organized company conceivable. Managers never left there office and “the people” where left to fend for them selfs. “The people” where at full strain and exhausted and everybody was complaining about their problems.
Within a few weeks I found myself joining the armies of complainers and I’m still complaining.

Over the last few weeks something has changed. Instead of getting annoyed about all the problems I see at my work I find that I’m ever more getting annoyed with myself.
I used to have a very nice life filled with all kind of mysteries. Even though there are a lot of emotions I can’t recognize there are a few I do recognize and I used to have them.
But nowadays the only emotion I have is annoyance. The mysteries are gone and all I do is getting annoyed with people and circumstances.

Last Wednesday I thought that there should be some way to stop annoying. Maybe I could ask my counselor if he knew of a way.
I didn’t.
When I started thinking about ways to stop annoying the answer was obvious.

Up until I started working at Promen I used to research subjects I didn’t understand.
Usually I chose very strange subjects to research. e.g. Why people consider suicide. Did king Richard III of England really have his nephews killed. And several other strange subjects.
Some subject would fascinate me for some months or years and I would read a lot about it and think a lot about it, reach some sort of conclusion and forget all about it.
I never quite understood why I did it, but now I have kind of a theory.
Gifted people often have strange interests. I’m not gifted but on the edge of being gifted. If my IQ had been a few points higher I would have been.
People with autism are supposed to collect things but as far as I knew I never did. To me a collection is just something that takes a lot of room and you have to dust it. It never made much sense to me.
But now I’m realizing that I did collect. Not things you can put in your bookcase but information.

The only thing is that I never did anything with my information. I read about something. Thought about it. At some point I would reach the end of my interest. And there it would end.
Not any more.
Now I have this blog.
Instead of only reading about a subject I now can go a step further and write about it. So I will be starting a new category. Projects.

I’m not completely sure how I will go about it.
Maybe I’ll first read a lot about some subject and then write something about it. Or maybe I will write about a project while I’m still researching.
Which ever way I chose it should help me get my juices flowing and my mind off of the annoying circumstances at my work.

I’m thinking that my first project will be about suicide. I’ve read so much about that subject over the years that I would be nice to write about for a change.
My second project will probably be about the economic situation in the Philippines. A subject about which I know nothing what so ever. Probably I’ll also do a project about the movie Zeitgeist.

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Being autistic or having autism

by Henk ter Heide on Saturday October 27, 2007

Thinking about the relation between autism and identity.

The last few weeks I’ve been thinking a lot about the difference between having autism and being autistic.
When I first started writing about autism I talked about having autism primarily because there are more searches for the keyword “autism” then for the keyword “autistic” and I wanted my writings to be found. Even so I had to correct myself several times. I’m prone to using the word autistic.
In the mean time I also read about autism. At first I read about the symptoms of autism and those article were written by experts in the field who always talked about having autism.
The last few months I try to read article that are written by people that have experience with autism themselves. That turns out to be much harder for the simple fact that there don’t seem to be many people with autism who blog about autism.
But the few I’ve found are adamant in their opinion that it should be “having autism” and not “being autistic”.

They seem to hold the same opinion I come across at the sheltered workplace were I work. “I’m not a wheelchair but I sit in a wheelchair.” Or a more clear cut explanation: Not being able to walk or to see or to lift heavy objects is only one of my qualities. It’s not my foremost quality.

But I still haven the feeling that it should be “I am autistic” and not “I have autism”.

So I’ve been thinking about the difference by comparing it to being gay.
I’ve defined myself as being gay, although it is indeed only one of my qualities, ever since I was 18 yr old.
I discovered that I liked men when I was sixteen. For two years I thought about what that meant for my life and what kind of problems I would have to face and by the time I was 18 I came out of the closet. I have had my fair share of problems but I must say that hardly any of them had anything to do with being gay.

But there is more.
I’ve met several thousand gay people over the years and in general they had a good life and were happy with the choices they had made.
I’ve also met some 50 to 60 men who like men and without exception they have a lot of problems. Not only with their sexuality but with all parts of their lifes.
They don’t like the job they have. They don’t like their girlfriends/wifes. They don’t like sneaking around (although they only think about it but never actually do). And most of all they are always afraid that they will be found out and loose every thing they have. (Although I would think they hardly have anything that is worth anything.)

Reading about the problems that people who have autism describe I’m reminded of a lot of the problems that are common with men who like men.
Fears of the consequence of being different. Fears of being bullied. Fears of not fitting in. Stories about painful remarks people have made.
What I miss are stories about solutions. Thinking about the sort of problems you’re likely to face and how you will deal with them. Instead of being blindsided the moment it happens.

So what’s the difference?
Well the difference between having autism and being autistic is something I’m still thinking about. But the difference between being gay and liking men is something I’ve solved years ago.

Sexual preference is hereditary. It’s something that just happens to you. You don’t control it. It’s something that makes you different from other people and they will react.
Identity is a choice you make. Usually it entails thinking a lot about your main characteristics. It means that you’ll have to think about what you want from life and what you want to change. You’ll have to think about what you could change and how to do that. You’ll also have to think about the characteristics you can’t change and how to deal with those. You’ll have to think about the kind of problems you’ll have to face and how to deal with them.

It’s a lot of work to think about identity but at some point you’ll be finished. You will have a blue print with a describtion of the way you want to live your life. Although this blue print won’t prevent you from having problems it will make it a lot easier to deal with those problems.

Twenty five years ago I had dozens of strategies about how I could deal with the kind of problems a gay man could face. I’ve forgotten most of them because I never came across any of those problems.
I’m not sure why that is. Maybe I was to pessimistic about what could go wrong. Or maybe I was able to recognize problems and avoid them. Or maybe I displayed so much selfconfidence that people left me alone.

This time I think it’s probably better to just define an identity for myself to steer my choices. I don’t think it’s a good idea to spend to much energy in thinking out strategies for situations that might never happen.

I define my identity as autistic gay artist who will get back at his ideal weight of 65 kg at some future point.

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Dialing down expectations

by Henk ter Heide on Monday October 1, 2007

I have to dial down my expectations to, hopefully, reach a point where I can fulfill my expectations.

Working at the sheltered workplace I meet a lot of people who feel that they are destined to do an important job.
Usual they are people who were born with an disability. They were told there whole lifes that people with a disability should have the same rights as other people. Sadly they were never told that they should fight as hard as other people.
For the largest part these people have hardly any schooling and never had the taste of a real job before they entered the sheltered workplace. Although they know almost nothing about real life and do the most stupid of jobs they still feel that an important job should be handed to them on a silver platter.

Although I’m also born with a disability I never knew that. A few years ago it was suggested that something might be wrong with me. I only last year it was found that I have autism.
Living in the real world I’ve always known that you have to fight for those things that are important to you. I never was very succesfull with my fight, but I did know.
I would never have expected that I would fall for the feeling that I should get something for nothing.

But I have.

When I started drawing, earlier this year, I felt that since I could see pictures clearly in my minds eye, it should be very easy to draw them. I should be able to create beautiful drawings without much of an effort.
With my first drawing I found that what I see in my minds eye looks nothing like the real thing. But I figured that with a little more experience I could make it work.
But my last two drawings make it very clear that I won’t be able to draw the pictures in my mind.

So I find myself at something of a fork in the road.
What to do next.
Feeling some what panicked last week I have been thinking about just giving up. Just putting my pencils in a cupboard and forgetting they ever excisted.
But I couldn’t do that. I couldn’t go back to a life of watching telly and playing computer games.
That would leave a big hole in my life.

The other possibility is to start experimenting. Stop trying to draw the pictures in my mind. Instead just draw.
People with autism are supposed to have very little imagination so I have no idea where that will lead me.

Maybe at some point I will find that I will have gained the skills to draw the pictures in my mind. But it is also possible that I’ll just draw nice, hopefully some beautiful, pictures without ever reaching that goal.

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Pity (Study: Mixing colors)

by Henk ter Heide on Friday September 7, 2007

List

At BAVO they have me thinking about why I want to leave the sheltered workplace Promen. I already have fairly large list with items like the kind of work they offer and lack of control about your own work and the large number of people you meet on a daily basis.
This morning I though of an other reason: The lack of independence of most of my colleagues.

Temper

A few days ago one of my mentally impaired colleagues complained that she couldn’t control her temper and how that might lead to her being transferred to a different department. I told her that she should just try.
Which she is doing right now and it seems to be working.

Misconception

This morning I talked to an other colleague. I’ve seen him around a few times in the last few weeks and I actually thought that he also was mentally impaired.
He started complaining about how companies don’t pity people with disabilities anymore. He was fired after doing office work at this company for 30 years. When he started they only had 25 employees and they hired him out of pity. But nowadays they have 600 employees and they bullied him out.

He tried for five years to get an other job but companies just don’t want to have people with a disability.
I arguid that he should find a skill that they would want to pay for. But not only is he 51 years old and doesn’t want to go back to school but above all he is convinced that people don’t pity him anymore.

Mirror

The funny thing is that if he would take one honest look in the mirror he’d know why nobody wants to hire him:
He’s always playing with his dentures and he drools…
Mixing colors 5E
Mixing colors 5E

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Mixing colors 5F
Mixing colors 5F

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“(“, is not only the stranges name for a blog I’ve come across up till now. But he also has some very nice simple drawings.

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